AHHHHH! so close to the one year mark. 9 days away :)
Things have been pretty busy lately. And John has not been feeling great. Feeling ok, just not great. He has been more tired and napping and has had skin GVH! It is really itchy and drives him crazy. It has been on his face, head, and torso. His cyclo has not been tapered in a while because of it. So far, it has only gotten a little better and we just have to wait and watch. Tapering cyclo can make it worse.
Also at his appt last week his liver enzymes were all HIGH. Some were almost doubled. I hate that. I always watch those liver numbers and they have been great lately. It actually could be GVH too. Since he has had it on the skin it is more likely it can be in other places too.
Next week Tuesday (one week from today), John has his 1 year post transplant appt. They will check all those numbers and we will go from there. We are hoping and praying there are still no signs of cancer. But, we also have to remember there are 3 things to worry about: the cancer, GVH and infections. Once he is off cyclo that risk of infections is less and he can be re-immunized. But as long as the cyclo is being tapered his risk of GVH is higher!!! Cancer sucks.
This was John on Sunday. We all came home from church and he was sound asleep. Yes, he is holding a pasta spoon in his hand. He uses it to scratch his back where it itches from the GVH :) I kept scratching it for him and finally gave him this spoon, which works great.
John is staying super busy right now. Still loves teaching his voice students and is preparing for his annual bone marrow drive, which is in less than 2 weeks. He is so excited for it. AND he applied for a job with the LLS. He has another interview tomorrow and he is pretty hopeful about it. It is part time and pay is not great. But, it gives him more to do and he would get to work with LLS and he would get out of the house :)
We are all pretty nervous about his appt next week and all the tests. But, still holding on with faith.
