We still do not have all of the results from John's 100 day appointment. But, another exciting one is that he is 100% his donor! That is super super exciting. The Dr.'s were hoping for at least 50%. We will meet with Dr. Peterson (the Director of the BMT program) on Oct.1 for a consult appointment and go over all the results with him. But this one and the bone marrow are the most important ones and we could not have hoped for better results.
What this means for now is that John is technically in remission :) But, it is complicated. He does not have a solid cancer, where when it is gone, it is gone and your life can go on. They are no cancer cells currently in him, but there are many other things to worry about. Pretty sure we don't have to worry about the cancer coming back. Although it is slightly possible. The Dr said it is super super rare for anyone to go back to their own cells after hitting 100% donor cells. And the only way his cancer can come back is if his cells come back. BUT, he still has NO immune system and won't for a while. Dr. Konopa said we now need to switch gears and just keep our eyes open for infections and graft vs. host disease. John is not considered cured for 5 more years. We are hoping the worst is behind us, but who knows.
I still sanitize like crazy, wash hands like crazy, dust every day. John can not vacuum or help in the yard either. If the kids even have a runny nose they can not be in the same room as John. John still can not go any where with crowds. He really only leaves the house to go to appointments. Last night he went to the court of honor to see Michael receive his tenderfoot, but went late and left early. John will get another bone marrow biopsy in 9 months (at his one year post transplant date). And then he should start getting immunizations.
We are still stuck in our 45 min window from LDS Hospital. ( I am honestly going crazy) :) They say when he is down to a low dose steroid and gets his central line out we can go a little further. That might be by the end of the year at the earliest.
Our plan is to go to Disneyland ASAP!!!
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