December always goes by way too fast. But we are having fun and happy that John is not inpatient. Last year at this time he felt so crappy. Chemo was wiping him out and he also had pneumonia. So this year is a little better :) No chemo and hopefully no pneumonia. So far John has only had a few little colds and 2 low grade fevers.
John is slowly feeling better. He is still pretty tired, sleeps in and if he doesn't takes a good nap. He is still nauseas some days and they are trying to figure out why. We are all grateful for the energy that he does have.
John had an appt today to do a test to check his hydro cortisone level. They are wondering if he is deficient in that. We have the results but don't really know what it means. They will call tomorrow and explain it. His numbers are all fine. His liver enzymes were higher last week and gratefully back down today - those ones always worry me and are the first ones I check every week. John does have every other week appts but sometimes it doesn't work that way. We were in today and 5 days ago and again in one week. Just depends on tests.
We had a family Christmas party and I wanted all the kids to do a pyramid, and then changed my mind. But, Isaiah really wanted to - so this is what we did :) Yes, John is finally getting his hair back and loosing some of that prednisone water retention.
Today we went and saw "Frozen" - a really great movie. We have been to a few movies recently. John wears his mask and if it is not crowded and we have a "bubble" he takes it off. We take a blanket to put over the seat and it works good. We always go mid day and it has never been crowded.
We hope and pray John keeps improving so we can take our Disneyland trip in 2 months. The kids are so excited. As long as he stays how he is, we can go.
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