Wednesday, January 22, 2014

Doing pretty good

Overall, things are going pretty good. John's energy levels are getting much better and he is eating just fine now :) (I'm actually trying to get him to slow down on eating) :)! 
His appointments and labs have been good. As Dr. Asch would say, "his liver is tickled". His liver enzymes are all a little high. They were all normal about a month ago. This is to be expected though and no on is concerned (except me - who checks labs immediately every week to see if they are going down). John either has another cold or the same one keeps coming and going. But, it is just a little cough and runny nose.
One of John's problems right now is that he wants to feel "normal" and do "normal" things. He actually feels somewhat normal. But the problem is, his immune system is still no where near being "normal". And we are still right in the middle of cold/flu season. He wants to go out and do things, but he shouldn't be. We do go to the movies about once a month. Which is really fun. We go on a week day to the first showing of the day. Yesterday we went and saw "Saving Mr. Banks" and there were only 4 other people in the theatre.  And it was a REALLY good movie. One of the best I have seen. 
We are also starting a home project. We are adding a wall upstairs and adding a bedroom. John is starting to teach voice lessons again - he is really excited to have something to do. But, we are turning Jenna's room in to his "studio". Our plan has always been to add bedrooms (we thought we could do 2, but can't because of the windows). So we are adding one and it will be BIG, so the boys will share it and we can move Jenna upstairs to Isaiah's room. It is just turning out to be a bigger project than we realized. We were hoping to have the work done while we are in CA next month. (YAY - we leave one month from today!!!!). We will see if that can happen.
One of John's goals pre cancer was to run a half marathon. Now that he feels good enough, his plan is to walk a half marathon. Actually he wants to do 2-3 this year. I said I will do at least one with him. I am not a runner, but love walking. The first one is in June.
Also, I can't believe we are 11 months past John's first transplant. Time is really going by fast.

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