Sunday, November 17, 2013

The holidays are here

The tree is up. John was so excited to be feeling better this Holiday season. Last year really sucked for him. The  chemo was making him so sick and tired and nauseas. He did not enjoy this time of year. I pretty much did everything, with some of the kids help.  So, this year the tree went up a little early. It was great having John's help. 



John is feeling pretty good. His steroid dose is down to 10 mg a day. That is almost a regular dose. His blood sugars have been almost normal this week. At one point he was taking up to 40 units of insulin every day. This whole week I think he has only had 2 units. He is still a little on the tired side. His physical therapy and occupational therapy are both every other week now. Clinic appts are still every week and will be for a while. But, he did switch his micro fungun med. That one was through his IV line and now it is an oral med.  It is a suspension med, and is super nasty, but if his liver continues to do good with it, he should be able to get his line out in a few weeks. That has been our goal. Because that central line is what keeps us in our 45 minute window from LDS Hospital. 

Our good friend Houston got bad news this week.  He has AML and had a stem cell transplant on Sep. 30. He had a relapse and his cancer is back. It is in 69% of his marrow, and 3 weeks ago it was 0%. This is devastating, but no one is giving up. Those docs will keep trying and trying. We are praying hard for them. He just turned 29 yesterday.

And then yesterday my neighbor told me that her husbands brother has multiple myeloma. AHHHH! He is 44 and has 5 kids. I hate stupid cancer. 

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