Thursday, April 17, 2014

Much easier this time

John was able to baptize Isaiah on Saturday :) Our last one, that is kind of weird. And yes, this one was much easier for him than Jenna's was. It is amazing how much can happen in 1 1/2 years. When Jenna turned 8 John was just diagnosed with cancer. He literally made it to her baptism straight from the hospital because of pneumonia. He was so weak and tired and looked so sick. Isaiah's was no big deal. He felt great and had plenty of energy.  It was a great day.


So ya, overall John is doing fine. He is definitely not up to normal energy levels, but getting stronger every day. He is loving teaching voice and his students and they are getting ready for a recital in a few weeks. He still has appointments every other week and this week everything was great. Our newest thing is he has skin GVH :( If you have to have GVH the skin is the best place, but still not fun. Way better than the gut though :) It is mild but still there and uncomfortable. It is mostly on his torso. A real bumpy reddish rash. Also around his eyes are swollen and pink. Unfortunately his cyclo had to go back up. He was only a few months away from being off it as he had been tapering. But, oh well - if all goes well, probably 4 - 6 months now. We are hoping the GVH stays on his skin and does not spread anywhere else!!!

John is so anxious to get back to church and do "normal" things. That is the hard part right now. This Sunday he is going to church because it is Easter, but then will have to wait a few months before going again. The Docs said late in, early out and no shaking hands :) Gratefully we are at the end of cold/flu/RSV season. So, not as many germs to worry about. It still amazes me how much our lives have changed and how much of a germaphobe I am now :)

1 comment:

  1. The Good Lord answers prayers - YES! But not always in the way we might think best - and this time - HURRAY - He answered our prayers in the way HE thinks best - i.e. that the Philpott family gets to have a Daddy for at least a few more years! Don't worry; we are NOT letting up on the prayers which in your case include LOTS of thanks and gratitude. We LOVE the Philpott family - and always will. SMILES & LOVE to you forever from Glen & Bonnie Dolberg

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