Doing pretty good

There hasn't really been much to blog about lately. John has been feeling really good. He still can not do everything he wants to do. And we were just saying there is no way he would have enough energy to be working every day. But, he is able to help around the house and with kids a lot more. He usually sleeps until 8-9 am every day. But, gets up and ready and asks me what I need help with. He has been helping me in the yard, still walking almost every day. Most food tastes pretty normal to him - finally!! He is starting a bike rack project. It should be pretty simple and gives him something to work on. 

Last week John had arranged for me to go away for a few days! I really need a break and it was fabulous to go play with Linzi for 3 days. John was home and got kids to school, did homework with them, dinner, bed time. He did it all and even went grocery shopping (just early in the morning when not many people are there). He was EXHAUSTED when I got home. I fired him and he took a nap in the hammock for 3 hours!  The pictures above are John and I at Thanksgiving point. Linzi came and the 3 of us went there for a few hours. We rented the segways and had SO much fun. The best way to get around there.

On Saturday our family had won tickets to the Hogle Zoo. It was so nice to go and the weather was perfect. We got up and went right when they opened knowing it might be kind of busy. John wanted to go and did great. He just did not go inside any of the buildings and kept his distance from the crowds. It is so nice having him feel pretty good and able to do some things with us.

John will be admitted to the hospital on May 20. His infusion transplant will take place on May 29. We are hoping he is only in the hospital for 4 weeks. The Dr.'s say 4-6 weeks, we are aiming for the 4 weeks. He goes in 3 weeks before the last day of school. We are all kind of nervous. I can't believe all that has happened over the past 7 months. It is all so crazy and everything has happened so fast. It is scary knowing this is it - this transplant is the end, it works or it doesn't. There isn't anything the Dr.'s can do at this point after the trasnplant. They will keep a very close eye on him and help with what they can. I think one thing I really don't like is that no matter what it is something that will always be on my mind. He will always have the chance of Graft vs. Host disease and who knows what it can attack? We are hoping nothing! But the cancer could also come back. So, it is something we will always, the rest of his life, have to worry about. Right now though, it is one step at a time and getting  through the transplant. Also today we found out that his liver function is high! It was high after his auto transplant but they were pretty sure it was from being on TPN nutrients for so long. It eventually came back down to normal but has now been going back up consistently. So he has to go see a GI specialist this week and hopefully figure that out. AHHH - one step at a time.