AHHH - at 2 weeks. It has been a long 2 weeks. But in a weird way it has gone by pretty fast. It has been a stressful past few days. And of course, I am in between sisters for 3 1/2 days. John has had a bad pain in his lower left side. After a few days an x ray came back clear. Then after another day of no improvements a CT scan was done. This showed inflammation and a blockage in the large intestine near the colon!! NOT good news. For a typical healthy person it means surgery. But for John, that is not really an option at this point with NO immune system. So he is currently on a bowel rest diet. Which means nothing other than water only to take his pills. He is still on the TPN for nutrition, but is finally starting to feel hungry and wants food. It seems like the pain is a little better today. We are all really hoping this solves itself as John's numbers come up. If he has to have surgery it is pretty risky and dangerous for him.
He is still pretty nauseas and on constant anti nausea meds. But he now only throws up about 2 times a day. That should also get better as his numbers come up. Which should really start coming up in the next 2 days. If his nausea gets worse or keeps coming they will have to put a tube down his nose and into his stomach to have a constant suction. EWWW, and he does not want that. They really try to avoid as many tubes as possible. Tubes can cause infections and John has no immune system to fight it.
John seems to be doing ok overall. He is getting really tired of his room. He is supposed to go on at least 3 walks a day. But he is only allowed to walk on his floor and only the East side. So, it is not super exciting, but does get him out of his room. He has not been real up to leaving his room though with his super low energy level. It's a bad circle. Ideally John should be home in a week. Not so sure that will happen. His white blood cells have just started to come up but barely and are only at 200. His nutrifills have to be at 500 and they are still at 0. He also has to be eating and drinking, which he is not doing. And this blockage and inflammation has to be cleared.
I brought the kids to see John yesterday. They were excited to see him. Michael had not seen him since he has been here. We had Family Home Evening here in John's room :) And we took John on a walk.
I am hanging in there, one day at a time. I am going through a stage where I am super jealous of everyone that has any sort of "normalcy" to life. I look at friends and family and get kind of mad when their Saturdays are full of date nights and soccer games and basketball games and cooking and playing. I really need to not look on facebook because I get so frustrated when peoples biggest issues would be my biggest dream right now. Everything is super hard right now. I am really trying to get use to this "new normal". But new normal keeps changing so I can't get use to anything. Just keep trying and praying with faith.
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