The past few days have been pretty uneventful (gratefully). John has been feeling ok and even working full days. He comes home pretty tired, but not so tired he goes straight to bed. He went trick or treating with us and has been helping with homework in the evenings :)
John is excited for the weekend and to rest a little. His PICC line is really helping but also really bothering him, it itches and hurts. But administering his antibiotics has been so much easier. He is on day 17 of his first months cycle and "should" be losing his hair any day (actually be may not). The last 2 weeks of each cycle is less medications so he is supposed to feel better and have higher energy levels. We have found that to be true so far.
Our trick is to keep him from getting colds, flus, or more pneumonia this winter - that will not be easy. He can not go to church for a while and that will be really hard from him :( He can not go to movie theatres, grocery stores, restaurants, any real public place like that. This will take some getting use to. Some days I feel like I am all of a sudden a single mom to 6 kids (one of which is John who is pretty high needs). Some days seem somewhat normal though. It is hard to plan and still one day at a time.
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