I hate this

OK - here goes:

Well, first off - Saturday was kind of busy. But, a good day. Around 4 pm we met my friend Melina and she took family pictures. I am so excited to see them. The kids were pretty hyper, but I am sure we have some good ones. Then we ended up having Rachelle's birthday dinner at our house because they lost power. It is so nice to only live 1 mile apart :) It was a little later night for the kids but it was fine.

Yesterday was great. We had a very nice Sunday and John sang in church and did amazing. We had a birthday dinner for Jenna with family and it was so nice. She wanted BBQ hamburgers and chips and jello :) It was kind of crazy, but it was fun. And fun to celebrate Jenna's birthday early. Abby reminded me today that last year we moved on Jenna's birthday - poor Jenna!!! Next year she gets an extra special birthday :)

So, this morning we got the kids to school. John was scheduled for his first chemo treatment at the Dr's office. It was supposed to be for 8 hours and some one was supposed to stay with him. So, we were packed for the day :) Books, movies, lap top, games, food.  We were ready. First we meet with Dr. Frame. He comes in and talks to us. He tells us that after getting the results of the tests from last week things have changed. John does not have Chronic Lymphocytic Leukemia. He has multiply myeloma and probably also has Plasma cell leukemia.!!!! I was not surprised to have a different diagnosis, because he did not have much to go off of to guess the CLL. They needed to do more tests to figure out what was going on. This diagnosis made more sense because John has been breaking his ribs so easily and that is what happens with multiple myeloma (MM). The only good news we got was that the CT Scan came back perfectly fine. Still waiting on bone marrow biopsy results. This type of cancer is somewhat similar to CLL, but different chemo treatments, pretty much same side effects. So today was just a 20 minute IV injection of bone strengthener. We were home by noon, which was nice. I was able to get some things for Jenna's birthday. John was scheduled to start the new chemo treatment in a week. Mostly oral pills but in the office twice a week for a 1 hour IV chemo treatment.

Well, we were home and John had a question for Dr. Frame. He calls and leaves a message. About an hour later Dr. Frame calls him back. He said there was a change of plans. He is referring us to a specialist at LDS Hospital. The hospital would be calling us tomorrow morning and to tell us when to come in for a consult tomorrow. AND very likely John will be admitted to the hospital tomorrow for in patient hospital treatment!!!!! The cancer is more advanced than they first thought and we need to start aggressive treatment NOW!

It is not easy to hear this with all your kids right there.  John and I were both trying to hold it together. We have no idea what this means. All we know is that it is bad enough to need a specialist and he needs to be treated in the hospital. We have no idea for how long yet.  After dinner we told the kids. It is hard to tell them with so many unknowns!! Abby and Michael are having a hard time. Abby is NOT herself and is very quiet these days. Michael says he cries at bedtime. I HATE this!! All I can tell them is it isn't fair, it is ok to cry and we will be ok.

An interesting thing is that I have a friend from high school that lives about an hour south of here. Her husband as a PA and works for this new Dr. Dr. Peterson.  He says he is the best and it is great that he specializes in this.

Yes, today has been a roller coaster and now John will be admitted to the hospital tomorrow or possibly later this week. Tomorrow we will find out more.