Ok - too much has been going on!
So, John continued to feel fine while at the hospital. Friday evening was told that as long as he did not develop a fever AND his chest xray showed improvement with the pneumonia he could be released from the hospital Saturday about noon. Luckily - that is what happened. I went to pick him up about 11 am and he was practically running out of the hospital :) We got home and had plenty of time to get ready for Jenna's baptism at 3 pm. The baptism was amazing and John had the strength he needed (he baptized and confirmed her, he sang a solo and we sang as a song as a family. He left right at the end of the baptism (no socializing for him). He came home and just relaxed the rest of the day. The Aunts and Uncles took our kids to a trunk or treat activity and I stayed home with John and his brother George came to visit for a little bit. It was a pretty good day.
Sunday started out good :) It was my birthday and the kids primary program at church. John came to sacrament for the program and then left. He had to wear his mask and we sat in the back. The mask makes him real sweaty though. We all came home after sacrament meeting and had a family "brunch". It was super fun, we had 2 breakfast cakes and scrambled eggs and OJ AND Rachelle, and Brook and Joy set up decorations all over the house and made it look like a birthday for me :) It was so fabulous and I SO appreciate it. John still seemed to be doing fine. Some of the family left at 1 pm to go to Brook and Dave's primary program. And we were waiting for home health to come and put an IV in John for at home antibiotics. They were running SO late and literally got here 2 hours late. We were supposed to eat dinner about 4 pm and that did not happen.
The first nurse came and tried twice and could not get John's veins to take the needle. And it was really hurting John. So, she called another nurse to come. We had to wait about an hour and then Tami came. We really liked Tami. Although it did take her about half an hour and 2 more tries to get an IV in. She was so nice and patient. John was not having fun and it was super stressful. The worst part was that she checked John's vitals and he had a darn fever!!!! We both just sat there and cried. She said it was ok, and wait to call the hospital because another few hours would not be a big deal (so we could celebrate my birthday). Problem was neither of us were really hungry :( His temp kept going up so we knew we needed to call. It got to almost 102 in the next few hours so I finally called the hospital. The PA called me back and happened to be the PA that was there Saturday when John left. He actually said since John was on 2 antibiotics to wait it out if he wasn't feeling sick. He was probably just reacting to something.
So, I liked that :) John got to stay home and watch the Giants win the World Series and his fever broke and started going down at bedtime. He slept great and felt good this morning. He has had a good day today and just relaxed. We went on a walk and watched Modern Family together while the kids were at school.
But, this afternoon we go to do his antibiotic. He starts to flush it and immediately big bubble under the skin and we know the catheter is NOT in the vein. AHHHHHH! It came out!!!! So, we had to call home health nurse again - They are literally down stairs right now trying to find another vein - I left after 2 tries and seeing blood squirt everywhere :( Problem is his veins are done. The chemo makes them weaker and they are spasming and won't take the IV now. Luckily he does have an appointment tomorrow to get a PICC line in. It should last for months. They go in through an arm vein and feed the catheter all the way through into a main artery by the heart. That will help a lot, I just hope they do not have trouble getting it in. John is REALLY tough when it comes to getting veins poked (I am not). And I am watching him in pain and I just cry. I hate it. Good news is that his temp has stayed down all day and he is feeling good. Hopefully at work Wednesday. I don't think he will go in tomorrow because he has to be at the hospital be 11:45 to get the PICC line in and then do bloodwork and a chest xray to check the pneumonia.
We have had a busy, busy past few days. John's parents were also in town and his brother George came down from Idaho for the baptism and to see John. Tomorrow is a new day!
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